Meet Maria. Maria is 9 years old. She is bright, kind-hearted, and full of laughter. She loves to play with her baby brother and older siblings, zipping around the playground, going down slides. However, Maria’s running and walking days are limited. Maria was born with a rare, progressive disease called Morquio Syndrome, also known as MPS Type IV. Morquio Syndrome is a type of lysosomal storage disorder. It is progressive, degenerative, unforgiving, and without proper intervention, patients will eventually lose mobility and require regular use of a wheelchair.
Unless we do something.
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